EUROPEAN RARE DISEASES RESEARCH ALLIANCE

Akronyymi

ERDERA

Rahoitetun hankkeen kuvaus

The European Rare Diseases Research Alliance (ERDERA) aims to improve the health and well-being of the 30 million people living with a rare disease in Europe, by making Europe a world leader in Rare Disease (RD) research and innovation, to support concrete health benefits to rare disease patients, through better prevention, diagnosis and treatment. This Partnership will deliver a RD ecosystem that builds on the successes of previous programmes by supporting robust patient need-led research, developing new diagnostic methods and pathways, spearheading the digital transformational change connecting the dots between care, patient data and research, while ensuring strong alignment of strategies in RD research across countries and regions. Structuring goal-oriented public-private collaborations targeted at interventions all along the R&D value chain will ensure that the journey from knowledge to patient impact is expedited, thereby optimising EU innovation potential in RD. To support its ambition and missions ERDERA has been designed as a comprehensive and integrated ecosystem of which structure can be compared to an institute encompassing three main parts: (i) funding, (ii) internal (in house) Clinical Research Network that implements research activities targeting clinical trial readiness of RDs and accelerating diagnosis and translation of research discovery into improved patient care, and (iii) related supporting services (Data, Expertise, Education and Training) as well as an acceleration hub that serve external and internal RD community, all supported by all-embracing coordination and strategy and foundational (inter)national alignment.
Näytä enemmän

Aloitusvuosi

2024

Päättymisvuosi

2031

Myönnetty rahoitus

143 880 €
Participant
INSTITUT DE PATHOLOGIE ET DE GENETIQUE ASBL (BE)
26 250 €
Participant
CENTOGENE GMBH (DE)
75 000 €
Participant
AGENTURA PRO ZDRAVOTNICKY VYZKUM CESKE REPUBLIKY AZV CR (CZ)
8 211.25 €
Third party
HEALTH RESEARCH CHARITIES IRELAND COMPANY LIMITED BY GUARANTEE (IE)
23 812.5 €
Participant
REDKI BOLESTI BULGARIA (BG)
16 162.5 €
Participant
MICYRN (CA)
Participant
Collecteur Analyseur de Données (FR)
358 000 €
Third party
RARE DISEASES INTERNATIONAL (FR)
111 187.5 €
Participant
CONECT4CHILDREN STICHTING (NL)
53 310.63 €
Participant
TEKKARE (FR)
270 000 €
Participant
CONSORCIO PARA LA EXPLOTACION DEL CENTRO NACIONAL DE ANALISIS GENOMICO (ES)
981 392.86 €
Participant
ENOSI SPANION ASTHENON ELLADOS (EL)
39 925 €
Participant
SONIO (FR)
113 037.5 €
Participant
PFIZER INC (US)
Participant
CRITICAL PATH INSTITUTE STICHTING (NL)
462 300.63 €
Participant
UNIVERSITY COLLEGE LONDON (UK)
Participant
CHECKIMMUNE GMBH (DE)
131 499.38 €
Participant
HIPRA HUMAN HEALTH SL (ES)
Participant
ST. ANNA KINDERKREBSFORSCHUNG GMBH (AT)
153 675 €
Participant
STICHTING RADBOUD UNIVERSITAIR MEDISCH CENTRUM (NL)
1 581 525 €
Participant
AICIB - AGENCIA DE INVESTIGACAO CLINICA E INOVACAO BIOMEDICA (PT)
80 210 €
Participant
AZIENDA SANITARIA UNIVERSITARIA FRIULI CENTRALE (IT)
165 112.5 €
Participant
Ministero dell'università e della ricerca (IT)
861 173.8 €
Participant
TEAM - IT RESEARCH SL (ES)
746 687.5 €
Participant
MILTENYI BIOTEC BV & CO KG (DE)
Participant
ROCHE DIAGNOSTICS INTERNATIONAL AG (CH)
Participant
MYSCIENCEWORK (FR)
157 500 €
Participant
STICHTING DUCHENNE DATA FOUNDATION (NL)
142 412.5 €
Participant
BERNU KLINISKA UNIVERSITATES SLIMNICA VALSTS SIA (LV)
117 802.5 €
Participant
SCIENSANO (BE)
203 437.5 €
Participant
IZMIR BIYOTIP VE GENOM MERKEZI (TR)
222 310.63 €
Participant
CHILDREN'S HOSPITAL OF EASTERN ONTARIO RESEARCH INSTITUTE INC (CA)
Participant
SORBONNE UNIVERSITE (FR)
12 031.25 €
Participant
TEDDY - EUROPEAN NETWORK OF EXCELLENCE FOR PAEDIATRIC CLINICAL RESEARCH (IT)
35 900 €
Participant
STICHTING VUMC (NL)
334 399.38 €
Participant
MINISTERSTVO ZDRAVOTNICTVI CESKE REPUBLIKY (CZ)
439 620.9 €
Participant
UNIVERSIDADE DE COIMBRA (PT)
379 015 €
Participant
MAPI RESEARCH TRUST (FR)
138 350 €
Participant
FONDAZIONE REGIONALE PER LA RICERCA BIOMEDICA (IT)
1 282 839.44 €
Participant
STICHTING UNITED PARENT PROJECTS MUSCULAR DYSTROPHY (NL)
96 539.38 €
Participant
ETHNIKO KAI KAPODISTRIAKO PANEPISTIMIO ATHINON (EL)
26 250 €
Participant
UNIVERSITAETSKLINIKUM HEIDELBERG (DE)
1 590 805.63 €
Participant
PANEPISTIMIO KRITIS (EL)
26 250 €
Participant
ASSOCIATION INTERNATIONALE DE STANDARDISATION BIOLOGIQUE POUR L'EUROPE (IABS-EU) (FR)
49 406.25 €
Participant
UCB BIOPHARMA SPRL (BE)
Participant
COPENHAGEN ECONOMICS AS (DK)
253 483.75 €
Participant
INNOVATIONSFONDEN (DK)
864 008.8 €
Participant
THALASSAEMIA INTERNATIONAL FEDERATION (CY)
37 425 €
Participant
EATRIS ERIC (NL)
508 355 €
Participant
BIOBANKS AND BIOMOLECULAR RESOURCESRESEARCH INFRASTRUCTURE CONSORTIUM(BBMRI-ERIC) (AT)
55 939.38 €
Participant
ECRIN EUROPEAN CLINICAL RESEARCH INFRASTRUCTURE NETWORK (FR)
28 925 €
Participant
THE CHANCELLOR, MASTERS AND SCHOLARS OF THE UNIVERSITY OF CAMBRIDGE (UK)
Participant
LABORATORIO REIG JOFRE SA (ES)
Participant
FRAUNHOFER UK RESEARCH LIMITED (UK)
Participant
GEORGIAN FOUNDATION FOR GENETIC AND RARE DISEASES (GE)
20 359.38 €
Participant
OSPEDALE SAN RAFFAELE SRL (IT)
314 288.75 €
Participant
FONDATION MALADIES RARES (FR)
983 388.13 €
Participant
IMAGINE INSTITUT DES MALADIES GENETIQUES NECKER ENFANTS MALADES FONDATION (FR)
236 211.75 €
Participant
UNIVERSITE D'AIX MARSEILLE (FR)
110 725 €
Participant
ACIBADEM UNIVERSITESI (TR)
8 973.13 €
Participant
ASS FRANCAISE CONTRE LES MYOPATHIES (FR)
182 250 €
Participant
CENTRE HOSPITALIER REG UNIVERSITAIRE DIJON (FR)
111 562.5 €
Participant
CANADIAN INSTITUTES OF HEALTH RESEARCH (CA)
Participant
DEPARTMENT OF HEALTH GOVERNMENT OF WESTERN AUSTRALIA (AU)
Participant
FONDAZIONE PER LA RICERCA FARMACOLOGICA GIANNI BENZI ONLUS (IT)
399 142.5 €
Participant
FUJIFILM DIOSYNTH BIOTECHNOLOGIES UK LIMITED (UK)
Participant
FONDS DE RECHERCHE DU QUEBEC - SANTE (CA)
Participant
FAKULTNI NEMOCNICE V MOTOLE (CZ)
156 800 €
Participant
EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION (FR)
811 033.13 €
Participant
Unitatea Executiva pentru Finantarea Invatamantului Superior, a Cercetarii, Dezvoltarii si Inovarii (RO)
864 278.8 €
Participant
RIGAS AUSTRUMU KLINISKA UNIVERSITATES SLIMNICA SIA (LV)
94 912.5 €
Participant
INSTYTUT GENETYKI CZLOWIEKA POLSKIEJ AKADEMII NAUK (PL)
26 250 €
Participant
BULGARIAN NATIONAL SCIENCE FUND (BG)
88 168.6 €
Participant
INSTITUT ZA MOLEKULARNU GENETIKU I GENETICKO INZENJERSTVO (RS)
28 223.75 €
Participant
LABORATORIOS HIPRA SA (ES)
Participant
VIESOJI ISTAIGA VILNIAUS UNIVERSITETO LIGONINE SANTAROS KLINIKOS (LT)
366 112.5 €
Participant
Cambridge University Hospitals NHS Foundation Trust (UK)
Participant
KLINIKUM DER UNIVERSITAT MUNCHEN (DE)
315 833.13 €
Third party
SIGMUND FREUD PRIVATUNIVERSITAT WIEN GMBH (AT)
138 193.75 €
Participant
CONSORCIO CENTRO DE INVESTIGACION BIOMEDICA EN RED M.P. (ES)
162 598.13 €
Participant
REGION NORDJYLLAND (NORTH DENMARK REGION) (DK)
26 250 €
Participant
Lietuvos mokslo taryba (LT)
152 891.05 €
Participant
HOSPITAL SANT JOAN DE DÉU (ES)
32 500 €
Participant
FONDS VOOR WETENSCHAPPELIJK ONDERZOEK-VLAANDEREN (BE)
620 594.41 €
Participant
REITHERA SRL (IT)
Participant
SKANE LANS LANDSTING (SE)
18 937.5 €
Participant
BUNDESINSTITUT FUR IMPFSTOFFE UND BIOMEDIZINISCHE ARZNEIMITTEL (DE)
128 534.69 €
Participant
ASSOCIATION GENETHON (FR)
448 963.75 €
Participant
INSTITUTO NACIONAL DE SAUDE DR. RICARDO JORGE (PT)
44 280 €
Participant
UNIVERSITY OF OTAGO (NZ)
31 800 €
Participant
SOTSIAALMINISTEERIUM (EE)
60 976.56 €
Participant
SIHTASUTUS EESTI TEADUSAGENTUUR (EE)
60 526.56 €
Participant
FONDS NATIONAL DE LA RECHERCHE (LU)
313 158.33 €
Participant
UNIVERSITE CADI AYYAD (MA)
34 496.88 €
Participant
AGENCE NATIONALE DE LA RECHERCHE (FR)
3 907 279.49 €
Participant
FONDS ZUR FÖRDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG (AT)
794 930.67 €
Participant
AZIENDA OSPEDALIERO-UNIVERSITARIA ANNA MEYER (IT)
38 437.5 €
Participant
REGIONE TOSCANA (IT)
281 700.2 €
Participant
OSPEDALE PEDIATRICO BAMBINO GESU (IT)
87 187.5 €
Participant
ISTITUTO ORTOPEDICO RIZZOLI (IT)
16 250 €
Participant
FONDAZIONE TELETHON (IT)
1 401 160.3 €
Participant
NORGES FORSKNINGSRAD (NO)
464 271.41 €
Participant
INSTITUTO DE SALUD CARLOS III (ES)
1 899 967.27 €
Participant
NARODOWE CENTRUM BADAN I ROZWOJU (PL)
1 026 060.06 €
Participant
STOCKHOLMS LANS LANDSTING (SE)
18 937.5 €
Participant
SLOVENSKA AKADEMIA VIED (SK)
52 169.75 €
Participant
MINISTERO DELLA SALUTE (IT)
865 673.8 €
Participant
FONDS DE LA RECHERCHE SCIENTIFIQUE- FNRS (BE)
283 821.89 €
Participant
SCHWEIZERISCHER NATIONALFONDS ZUR FORDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG (CH)
Participant
FUNDACIO HOSPITAL UNIVERSITARI VALL D'HEBRON - INSTITUT DE RECERCA (ES)
771 525 €
Participant
FUNDACAO PARA A CIENCIA E A TECNOLOGIA (PT)
316 043.45 €
Participant
ZORGONDERZOEK NEDERLAND ZON (NL)
1 990 795.26 €
Participant
FUNDACIO CENTRE DE REGULACIO GENOMICA (ES)
70 875 €
Participant
LATVIJAS ZINATNES PADOME (LV)
103 435.63 €
Participant
THE HEALTH RESEARCH BOARD (IE)
597 314.15 €
Participant
RANNSOKNAMIDSTOD ISLANDS (IS)
150 500.42 €
Participant
DEUTSCHE FORSCHUNGSGEMEINSCHAFT (DE)
Participant
FUNDACIO SANT JOAN DE DEU (ES)
100 691.25 €
Participant
NEMZETI KUTATASI FEJLESZTESI ES INNOVACIOS HIVATAL (HU)
272 571.89 €
Participant
AIT AUSTRIAN INSTITUTE OF TECHNOLOGY GMBH (AT)
141 251.88 €
Participant
VETENSKAPSRADET - SWEDISH RESEARCH COUNCIL (SE)
437 258.38 €
Participant
TURKIYE BILIMSEL VE TEKNOLOJIK ARASTIRMA KURUMU (TR)
458 588.15 €
Participant
MINISTRY OF HEALTH (IL)
434 008.01 €
Participant
REGION SYDDANMARK (DK)
75 000 €
Participant
VERKET FÖR INNOVATIONSSYSTEM (SE)
425 956.62 €
Participant
AARHUS UNIVERSITETSHOSPITAL (DK)
38 437.5 €
Participant
ASSISTANCE PUBLIQUE - HOPITAUX DE PARIS (FR)
808 416.25 €
Participant
VIB (BE)
12 812.5 €
Participant
REGION HOVEDSTADEN (DK)
75 000 €
Participant
CONSORZIO PER VALUTAZIONI BIOLOGICHE E FARMACOLOGICHE (IT)
138 637.5 €
Participant
Genetic Alliance (UK)
Participant
SERVICE PUBLIC DE WALLONIE (BE)
871 298.8 €
Participant
MINISTERSTVO ZDRAVOTNICTVA SLOVENSKEJ REPUBLIKY (SK)
56 175 €
Participant
BUNDESMINISTERIUM FUER BILDUNG UND FORSCHUNG (DE)
2 683 005.99 €
Participant
RIGAS STRADINA UNIVERSITATE (LV)
15 430 €
Participant
UNIVERSITA DEGLI STUDI DELLA CAMPANIA LUIGI VANVITELLI (IT)
38 437.5 €
Participant
MEDICAL UNIVERSITY SOFIA (BG)
26 250 €
Participant
ROYAL COLLEGE OF SURGEONS IN IRELAND (IE)
38 437.5 €
Participant
PARIS-LODRON-UNIVERSITAT SALZBURG (AT)
158 736.25 €
Participant
UNIVERSITEIT HASSELT (BE)
147 093.75 €
Participant
UNIVERSITAETSKLINIKUM FREIBURG (DE)
200 461.88 €
Participant
UNIVERZITETNI KLINICNI CENTER LJUBLJANA (SI)
38 437.5 €
Participant
BAR ILAN UNIVERSITY (IL)
49 808.75 €
Participant
TARTU ULIKOOL (EE)
225 313.75 €
Participant
UNIVERSITAETSKLINIKUM AACHEN (DE)
64 031.25 €
Participant
UNIVERSITA DEGLI STUDI DI SIENA (IT)
38 437.5 €
Participant
UNIVERSITEIT TWENTE (NL)
188 560 €
Participant
UNIVERSITEIT ANTWERPEN (BE)
25 625 €
Participant
ACADEMISCH ZIEKENHUIS GRONINGEN (NL)
796 783.13 €
Participant
UNIVERSITA CATTOLICA DEL SACRO CUORE (IT)
81 231.88 €
Participant
ELSEVIER BV (NL)
210 600 €
Participant
ASTRAZENECA AB (SE)
Participant
IDRYMA EREVNAS KAI KAINOTOMIAS (CY)
870 292.51 €
Participant
INSTITUT JOZEF STEFAN (SI)
38 925 €
Participant
UNIVERSITY COLLEGE DUBLIN, NATIONAL UNIVERSITY OF IRELAND, DUBLIN (IE)
29 065 €
Participant
UNIVERSIDAD POLITECNICA DE MADRID (ES)
538 439.38 €
Participant
UNIVERSITEIT MAASTRICHT (NL)
183 662.5 €
Participant
TECHNISCHE UNIVERSITAET MUENCHEN (DE)
341 562.5 €
Participant
LUDWIG-MAXIMILIANS-UNIVERSITAET MUENCHEN (DE)
Participant
JOHANN WOLFGANG GOETHE-UNIVERSITATFRANKFURT AM MAIN (DE)
41 488.13 €
Participant
ISTITUTO SUPERIORE DI SANITA (IT)
74 031.25 €
Participant
DEUTSCHES ZENTRUM FUER LUFT - UND RAUMFAHRT EV (DE)
277 025.63 €
Participant
FRAUNHOFER GESELLSCHAFT ZUR FOERDERUNG DER ANGEWANDTEN FORSCHUNG E.V. (DE)
382 532.82 €
Participant
UPPSALA UNIVERSITET (SE)
246 943.75 €
Participant
UNIVERSITY OF NEWCASTLE UPON TYNE (UK)
Participant
UNIVERSITY OF LEICESTER (UK)
Participant
UNIVERSITEIT GENT (BE)
99 375 €
Participant
UNIVERSITAT AUTONOMA DE BARCELONA (ES)
94 902.5 €
Participant
UNIVERSITA DEGLI STUDI DI ROMA LA SAPIENZA (IT)
42 589.38 €
Participant
ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM (NL)
408 989.38 €
Participant
ACADEMISCH ZIEKENHUIS LEIDEN (NL)
648 577.5 €
Participant
KATHOLIEKE UNIVERSITEIT LEUVEN (BE)
267 520.63 €
Participant
EBERHARD KARLS UNIVERSITAET TUEBINGEN (DE)
1 471 164.38 €
Participant
THE QUEEN'S UNIVERSITY OF BELFAST (UK)
Participant
CHARITE - UNIVERSITAETSMEDIZIN BERLIN (DE)
328 125.63 €
Participant
INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (FR)
4 516 325.88 €
Coordinator
CENTRE NATIONAL DE LA RECHERCHE SCIENTIFIQUE CNRS (FR)
106 176.25 €
Participant

Myönnetty summa

56 317 413 €

Rahoittaja

Euroopan unioni

Rahoitusmuoto

HORIZON Programme Cofund Actions

Puiteohjelma

Horizon Europe (HORIZON)

Haku

Ohjelman osa
Health (11673)
Non-Communicable and Rare Diseases (11691)
Tools, Technologies and Digital Solutions for Health and Care, including personalised medicine (11693)
Health Care Systems (11694)
Aihe
European Partnership on Rare Diseases (HORIZON-HLTH-2023-DISEASE-07-01)
Haun tunniste
HORIZON-HLTH-2023-DISEASE-07

Muut tiedot

Rahoituspäätöksen numero

101156595